One might not associate “ski town” with “summer getaway” but in reality, ski towns are off-season hidden gems waiting to be discovered. While these towns are celebrated for their winter wonderlands, their charm doesn’t fade when the snow melts. In fact, the off-season often reveals a completely different, yet equally captivating, side to these destinations. The absence of crowds means you can explore at your own pace, savoring the tranquility and natural beauty that may be overshadowed in the winter months. With outdoor activities like hiking, mountain biking, and kayaking readily available, you’ll find adventure without the below freezing temps. Plus, the vibrant local culture and cuisine continue to thrive, providing a more intimate and authentic experience. Whether it’s the scenic vistas, outdoor adventures, or local charm, visiting Ludlow, VT in the off-season offers a unique and rejuvenating escape for travelers seeking a quieter but equally enchanting getaway.
Nestled in the heart of the Green Mountains, Ludlow, Vermont, is a picturesque New England town that truly comes alive in August. A three hour drive from Boston, its stunning natural beauty, vibrant cultural scene, and wide array of outdoor activities make it an ideal spot to get away for a weekend! And while we spent a lot of time in our Airbnb, we still got to enjoy little tastes of what Ludlow has to offer.
The summer in Ludlow offers a playground for outdoor enthusiasts. Hiking and biking trails come alive as the lush green landscape flourishes. The Okemo Mountain Resort, known for its superb skiing in the winter, transforms into a summer paradise. Visitors can take scenic chairlift rides to the summit for breathtaking views of Vermont’s rolling hills. The adventurous can explore miles of hiking trails or try their hand at mountain biking on the extensive trail system.
Ludlow is surrounded by pristine lakes, making it a haven for water activities. Lake Rescue and Lake Pauline are perfect for swimming, paddleboarding, and kayaking. For a more relaxed experience, simply lounge on the sandy shores and soak up the sun. Or if you prefer waterfalls, Ludlow has those too – we hiked down to Buttermilk Falls, where our kids enjoyed swimming (and throwing rocks) into the shallows.
August brings a host of festivals and events to Ludlow. The Vermont State Fair, held nearby, is a celebration of agriculture, entertainment, and delicious fair food. Ludlow also hosts various music festivals and craft fairs during this month, providing a great opportunity to mingle with locals and other travelers. The Best of Vermont Summer Festival happened to fall on the weekend we were there! We were treated to live music, amazing food + drinks and some really cool vendors – our kids were stoked to see Alpacas (see below) and eat fried cheese curds.
We went to have a relaxing weekend, so we didn’t even see all of the things Ludlow has to offer. We drove through its historic downtown, which has charming brick buildings housing unique boutiques, galleries, and cozy cafes. I did jump out of the car to pop into a bookstore – I couldn’t help myself! But the town’s architecture harks back to a bygone era, and you can immerse yourself in the rich history of the area by visiting the Black River Academy Museum if that’s more up your alley.
Ludlow’s dining scene is a delightful blend of classic New England fare and innovative cuisine. Enjoy farm-to-table dishes featuring fresh, locally sourced ingredients. Don’t forget to try Vermont’s famous maple syrup and artisan cheeses, which are a culinary highlight of the region.
Our visit to Ludlow, Vermont was like stepping into a postcard-perfect New England summer. Whether you’re an outdoor adventurer, a culture seeker, or a food enthusiast, Ludlow offers something for everyone. The combination of natural beauty, historic charm, and cultural vibrancy makes Ludlow a destination that will leave you with unforgettable memories.
If you spend any time on my Instagram page, you’ll know that Polish food is comfort food in my house. My husband Lucas is Polish, and over the past (nearly 11!) years, I have come to love and appreciate Polish food for what it is: simple ingredients that come together to feel like a warm hug.
Crepes are one of the foods we eat at Christmas, with either smooth and lucious cottage cheese or farmers cheese inside and syrupy fruit compote ladled over the top. Don’t think these are just a Christmas treat though – we eat them whenever I get the craving.
COTTAGE CHEESE CREPES
INGREDIENTS:
FOR THE CREPES
2 eggs
1/2 cup water
3/4 cup milk
1 cup flour
3 tbsp butter, melted
pinch of salt
FOR THE FILLING
1 container of Cottage Cheese (or farmers cheese)
2/3 cup sugar
1 egg yolk
lemon zest, if you’d like
DIRECTIONS
To Make the Crepes: Combine all of the ingredients together in a blender and pulse on high. Once blended, put the batter in the fridge for at least one hour. Heat a small non-stick pan. Add butter to coat. Pour 1 ounce of batter into the center of the pan and swirl to spread evenly. Cook for 30 seconds and flip. Cook for another 10 seconds and remove. Lay crepes out flat so they can cool. Continue until all batter is gone. To Make the Filling: Mix together the ingredients. If you’d like, you can mix in the blender or with a hand mixer for a smoother filling. Assemble your crepes, top with compote and/or powdered sugar, and enjoy either warm or at room temperature!
Breakfast (or brunch) is my absolute favorite meal of the day and it’s even better when it requires next to no work. This is one of those easy recipes, that seems fancy but is less work than actual pancakes or French toast. This can be made in either a metal 9×13 pan or a glass one (they both work!). I used to make all my Dutch babies in cast iron but for a crowd (or in my case, a bunch of kids) this size is so much better!
This is adapted from Chrissy Teigen’s recipe*
Ingredients: 6 eggs 1 1/2 cups of flour 1 1/2 cups of milk 1 tbsp sugar 3 tbsp melted butter Splash of vanilla (I probably add 1 tbsp but I don’t measure vanilla ever) Pinch of salt +3 tbsp additional butter (out of the fridge)
Preheat the oven to 475
Mix all the ingredients except the cold butter in a blender until there’s no clumps (I use my @nuwave.now and it is 🤌🏼)
Once it’s warmed up, place 9×13 pan in the oven with an additional 3 tbsp of butter until the butter is melted
As soon as the butter has melted (1-2 minutes) take the pan out of the oven and pour in the batter
Bake for 17-18 minutes. Resist the urge to open the oven until then! You need it to stay hot so the pancake gets fluffy.
Sift powdered sugar over the top if you want + slather in maple syrup ✨
It’s taken 6 postpartum seasons (or is it one long fourth trimester?) but I’ve finally perfected my lactation cookie recipe and I’m going to share it with you!
Lactation Cookies
Ingredients:
1 cup butter softened 2/3 cup brown sugar 1/2 cup granulated sugar 2 tbsp vanilla extract 2 eggs (room temp) 2 1/2 cups old fashioned whole rolled oats 1/4 cup brewers yeast 2 tsp ground flax seeds 1 3/4 cups flour 1 tsp cinnamon 1 tsp baking soda 1/2 tsp salt 1 1/2 cups of add ins – my preference is 1 cup of chocolate chips + 1/2 cup of cranberries
Preheat the oven to 350F then line a baking sheet with parchement paper and set aside. Cream the butter + sugars together until combined. Add in the eggs and vanilla and mix for about 3 minutes until light and fluffy. Mix in the dry ingredients making sure to scrape the sides until the mixture is combined then fold in your add ins. Use a large cookie scooper to scoop out your dough and press flat to about 1/2 inch thick with your hand or the back of a measuring cup. Cook for 11-14 minutes depending on your oven (mine is having issues so it takes longer). You want to barely let them set – they should still be gooey! Let them cool at least 10 minutes on the cookie tray so they continue to cook. Makes about 20 cookies!
Fall baking is my favorite and I am so excited to share these Apple Pie Cinnamon Rolls with you guys! I know that the apple vs pumpkin debate is one that people feel strongly about … personally I feel like they have an equal place in fall baking but tend to bake with apples more in September and pumpkins more in October! I think it’s the appropriate transition from late summer stone fruits to go to apples, just because my fridge is typically so stocked up still at the beginning of fall!
Regardless though, incorporating fall flavors is something that I *have* to do, and that usually shows up first with breakfast-y foods! I’ve already made a few different breakfast foods using apples but these are 👏🏼 the 👏🏼 best 👏🏼
I adapted my go-to Cinnamon Rolls recipe to give them a seasonal spin, and I strongly suggest you do yourself a favor and try them because homemade Cinnamon Rolls are pretty much the best.
Apple Pie Cinnamon Rolls
(Makes 12)
Ingredients
For the Dough:
1 cup warm milk
2 1/2 tsp instant dry yeast
2 large eggs at room temperature
1/3 cup Wellsley Farms unsalted butter (melted but not too hot or it will kill the yeast! Even partially melted is fine).
1 tsp salt
1/2 cup granulated sugar
4 1/2 cups all-purpose flour (divided)
For the Filling:
1/2 cup Wellsley Farms Salted Butter
½ cup packed brown sugar
½ cup granulated sugar
2 tbsp Wellsley Farms Organic Saigon Cinnamon
½ tsp Ground Nutmeg
4 Wellsley Farms Organic Gala Apples, chopped
1/2 cup heavy cream*** (for pouring over the risen rolls)
For the Icing:
6 oz Wellsley Farms Cream Cheese
4 tbsp Wellsley Farms Salted Butter
2 cups powdered sugar
2 tsp vanilla
1 tsp cinnamon (optional)
Instructions
Set up your stand mixer with the beater blade. Pour milk in the bowl and sprinkle the yeast on top. Gently stir and wait 5 minutes. Then add the eggs, butter, sugar and salt.
Add in 4 cups of flour and mix until the ingredients are barely combined. Allow the mixture to rest for 5 minutes – this gives the flour time to soak up liquids! Then scrape the dough off the beater blade and replace it with the dough hook.
Beating the dough on medium speed, add up to 1/2 cup more flour. Knead for 5-7 minutes. At this point the dough will still be sticking to the sides of the bowl (don’t add more flour!) but if you get it on your fingers it will come off easily.
Remove the dough from the bowl and spray the bowl with cooking spray. Place the dough back into the bowl and cover with plastic wrap. Let the dough rise in a warm area for about 30 minutes or until doubled in size.(cont. in comments)
While that’s rising, make the filling!
In a medium bowl, combine the butter, sugars,cinnamon and nutmeg, mixing until well combined. Set aside with the chopped apples.
Generously grease a 9×13 inch baking dish with butter.
At this point, unwrap your bowl of dough. Flour your surface and your rolling pin and roll the dough to about a 24×15″ rectangle. Use a rubber spatula to smooth the cinnamon filling over the whole dough rectangle. Scatter the apples over the filling. Then starting on the long end, roll the dough up tightly. Trim the ends and then cut into 12 slices. Place in your prepared baking dish.
Preheat your oven to 375 and let your cinnamon rolls double in size, covered, for at least 20 minutes.
Once risen, pour the heavy cream over the cinnamon rolls and place in the oven for 20-25 minutes.
Meanwhile, make the icing. In a medium bowl, beat together the cream cheese, butter and vanilla until fluffy. Add the powdered sugar and cinnamon (if using) and beat until combined.
Once the cinnamon rolls are cooked through, let them cool for at least 10 minutes before icing them to prevent the icing from melting. Now you can either spread the icing on the warm rolls or wait until room temp (if you prefer a thicker frosting) and enjoy!
*my Instagram post was sponsored by BJ’s Wholesale. This blog post was not required by the terms of that agreement.*
I’ve posted a lot on Instagram in the past month about our nearly two week long vacation in Florida, but wanted to give more succinct suggestions on my blog! We did a LOT and all of it was really special. We haven’t had a family vacation since the year before I was diagnosed with sarcoma, and it was super needed.
I wanted to break down our activities for you in case you’re planning a trip now or in the future and want to know what to do besides visit one of the bigger theme parks! We only spent one day at Disney (let’s be honest here: Disney is $$$$ when you have multiple kids) and we didn’t miss it at all! Central Florida has so much to offer outside of Disney and Universal and it’s a shame that people often don’t venture outside of those parks!
We also didn’t stay at a hotel but at a rental home which is a great (and more affordable) option than many of the resorts, especially if you are going for a longer vacation. Our house was about 20 minutes from Disney Springs!
Hamilton’s Kitchen at the Alfond Inn, Orlando
Places to Eat
Hamilton’s Kitchen at The Alfond Inn*
If you’re looking for a five star meal in or around the Winter Park area of Orlando, look no further! Hamilton’s Kitchen offers a true taste of Central Florida, infusing traditional Southern cuisine with modern techniques and flairs. When I say that it was the best meal we had in our two weeks there I am not exaggerating! Get the shrimp and grits, you can thank me later.
When I found out about Boxi Park it was immediately added to my go-to list! Designed with the community in mind and constructed entirely out of repurposed shipping containers, Boxi Park is a free outdoor gathering spot with multiple food vendors and live music, among other things!
I love a good food pop-up and Boxi Park delivered on so many amazing options!
El Jefe, Canonita, Boxi ParkClaw & Order Original, Claw & Order, Boxi Park
Market Street Diner
This quaint little restaurant located in Celebration, Florida has all the retro vibes and serves up classic diner fare at an amazing price! I went with my sisters and daughters for brunch and we were left very satisfied and very full.
Variety of Breakfast Entrees, Market Street Diner
TheFriar Tuck
This restaurant is tucked into the town center at Cagan’s Crossing. Unassuming from the outside, it’s pretty much a portal into a casual English restaurant, serving up everything from Scotch Eggs (strongly recommend) to Cottage Pie (!!) to Sticky Toffee Pudding (so much better than the one you can get at a certain theme park, btw). On top of that, there’s a little market filled with imported English goods on one side of the restaurant, so you can take home products like Clotted Cream and real English tea. Lucas went back the same day that we went to listen to some live Irish music that evening and had a blast!
Scotch Eggs, The Friar TuckFish & Chips, The Friar Tuck
Places to Visit
Legoland Florida*
Legoland Florida
This place is really – not to be cliché – awesome. While it’s a little bit of a drive from Orlando, Legoland is totally worth it! Especially if you have younger kids. Unlike other theme parks that tend to be geared towards older kids, Legoland had tons of rides and areas just for little kids or that were fine for them to ride with an adult! Plus there are LEGO statues everywhere and my kids thought they were the coolest thing ever.
Legoland Florida
One thing that definitely made Legoland a must-visit for us was the water park! It is HOT in Florida in August and my kids spent hours playing in the water at the park and we pretty much had to force them to leave when the park was closing.
Disney Springs
Ok, it may come as a surprise that I’m writing about Disney Springs and not actual Disney World. Here’s the thing. We all know that Disney World is worth going to…if it’s in your budget! Both Disney and Universal are super fun and… ~expensive~ . Especially when you’re paying for multiple kids! And Orlando has plenty of places to go without visiting Theme Parks every day!
We loved Disney Springs so much that we went back a few times! There’s shopping, food, statues of your kids’ favorite characters and free parking!! It is a great place to walk around for several hours with or without kids. They also have a carousel which my kids begged to go on and enjoyed just as much as any of the rides we went to at Epcot.
Disney Springs
Celebration, Florida
Celebration, FL
This little town was designed and built by Disney and is such a worthwhile place to visit! There are a bunch of quaint little shops, spectacular Ice Cream, a gorgeous view and several cafes to choose from. Plus, the place really is *instaworthy* and totally a perfect place to take photos!
Celebration, Fl
Clearwater Beach
Like Legoland, this is a little bit of a drive from Orlando, but totally worth going to! Chances are that you do not live on the Gulf Coast which is, quite frankly, the best place to go to the beach in the United States. I feel pretty qualified to make that statement as someone who has visited nearly every major beach on the East Coast and a dozen or so on the West Coast… and it’s really true. The Gulf Coast beaches have gorgeous, powdery white sand and pristine, warm, calm water that isn’t going to knock your kids over or make you want to run and find a sweatshirt to put on cause you half froze to death just by sticking your feet in the water.
Clearwater Beach has pretty much everything: gorgeous hotels, great restaurants and a mix of both large and small surf shops! Parking isn’t free but it’s well worth the money. Clearwater Beach was one of the highlights of our visit and not just because one of my best friends lives in St. Pete!
That’s all for now! I hope this serves as a good guide for those of you looking for less-than-standard things to do in and around Orlando!
*all locations starred were collaborations with Visit Orlando – thank you so much for hosting us!
An induction was not what I had in mind for this little girl and I was definitely in denial about the possibility of her coming early – so when I had my ultrasound on Friday morning and my midwife told me that she’d dropped to the 10th percentile and to come in at 5 PM I was a little shell shocked. I called Lucas to let him know – “so, we’re having a baby today” and then called my mom who had just driven back to New York the night before (whose response was, “no shit?” 😂). I ran some last minute errands – aka, I went to target – and went home to get things together. After sorting things out with my sister, letting Mathias’ therapist know I’d be leaving early, spending way too much time attempting to get together that pampers post (thank you all, by the way) and trying not to panic – it was already after 4 PM and we were on our way to the hospital.
I had a “plan” in my head about how things would go. I’d try to go for as natural as an induction as possible. But when I saw my midwife around 6 pm, she checked me and I was only 3 cm. She said she could try to break my water but it would not likely break since I wasn’t 5 cm yet. So we tried, and it didn’t break. And I felt really disappointed – because I had been induced with Liv and knew I had a long, likely painful, night ahead of me. We started a low dose of pitocin at 6:30 PM and tried to get settled in.
At 7:15 I stood up to go the bathroom and felt a trickle of water down my legs. I looked at Lucas and was like… did I just pee or did my water just break? I think my water just broke….yup, my water definitely broke. 😂🥴 my water has never broken “on its own” before and while my midwife didn’t actually pop the bag, she did irritate it enough to help move things along. I felt positive again and hoped that maybeeeee just maybe, things would start progressing quickly.
They didn’t, really. The thing with pitocin is that it makes contractions feel more painful than they should be. At 9 PM I decided I wanted to just get an epidural and hopefully, get some sleep. My midwife said I was between 4-5 cm and thought it was a good idea.
I have had different experiences with epidurals – Mathias’ was too dense, Blaise’s disconnected, Liv’s was just right.
They prepped me as I breathed through my contractions. The anesthesiologist numbed me and I braced myself for the pressure of the epidural needle. Instead of the usual pressure, I felt intense pain on the left side of my back. I told them something wasn’t right and that it really, really hurt. I tried gritting my teeth through it and my nurse put her foot down and told the anesthesiologist to take it out. He insisted it was placed right but went to get his boss. His boss said the same thing – it was right, but they’d move it – and as they placed the second needle the exact same thing happened. I thought to myself, if I managed to save my leg from cancer just to get paralyzed from an epidural I’m going to be so pissed ☠️ but, thankfully, the pain started to subside. I texted Lucas to come back into the room and almost immediately after I hit send my stomach dropped and my head started spinning. I told my nurse that I felt really nauseous – she told me my blood pressure had dropped really low. I vaguely remember Lucas’ face when he walked in, wondering what the hell had changed in the moments since I had texted him. My vision started going dark and I told them frantically that I was going to pass out. In that moment they placed an oxygen mask over my mouth and I fully panicked.
The last two times I had an oxygen mask on and had started to lose consciousness was when I had my sarcoma surgeries. Both times I woke up in severe, inescapable pain, hours and hours later, alone, groggy, unable to move. And my brain connected that to this situation and lost control of any sense. I was crying and hyperventilating and everyone in the room was telling me I had to calm down, that my heart rate and the baby’s heart rate had skyrocketed and they needed to get down ASAP. Once the blinding panic started to clear I was able to calm down enough to ask Lucas to come hold me, though – and I said I wished I could have a hug from Liv because she’s the best at calming me down.
Afterwards, exhausted, I fell asleep.
Lucas had no problems sleeping whatsoever.
My nap lasted a grand total of 30 minutes. And for the next four hours, I spent my time alternating between watching Legally Blonde (twice), staring at the clock and bothering my nurse about if there was a way to make things move along faster. She helped me get in a few different spinning babies positions to try to encourage the baby to move down.
My midwife came in to check me around 2:45 and let me know that nothing had changed. I was still 5 cm dilated. We upped my pitocin again and they told me to try to get some rest.
I really felt defeated in that it was now 3 AM, I had been up since 6:30 on Friday with a 30 minute nap, and knew I still had to get through labor. I decided to hit the epidural button for more pain medication – which I hadn’t done yet – since it seemed like at this point I wouldn’t be delivering til after the sun came up. 15 minutes later or so I started to get more uncomfortable. By 3:30, I was at the point where I started to feel the pain come in heavy waves and told my nurse either I needed more pain medication or my midwife Anna needed to check me. Considering my slow progress up to this point, no one was in a rush to get Anna and the nurse called anesthesia to come give me a bolus to bring my pain levels down. Lucas had woken up from his restful nap at this point and had said to me, they don’t think things are moving this fast all of a sudden, right? I urged them to get Anna and she arrived at the same time as the anesthesiologist. She went to check me and said “don’t give her anything, I can see the head right here.” Lucas said at this point that Thea’s head was where Mathias’ was after I had already been pushing for hours. Anna looked at me and said DON’T. PUSH! As she ran to get her gloves and the tubes she needed to collect cord blood for genetic testing. As soon as she was dressed she told me I could take a small push if I wanted – and as I pushed Lucas looked at me and said, Faith, her head’s out, just take a breath and finish the push – and she was out!
Looking back two months later I can say it was my easiest birth, despite the intense panic episode sandwiched between calm moments. Physically, pushing out a 6 1/2 lb baby was much kinder on my body than any of my previous births and I was barely sore 48 hours after giving birth. At the time it felt like I spent so much time waiting and waiting … and I did. But the amount of time I spent in actual active labor was very short, maybe a total of 45 minutes. She was born at 4:05 AM, and an hour prior I was only halfway dilated. When I wrote this birth story out, a week after Thea was born, I was honestly still reeling from the shock of it all: the unexpected induction, the absurdity of giving birth during a pandemic, the panic attack, going home less than 48 hours from when I walked into the hospital to get induced and finally the adjustment that comes with adding a new baby to the family.
I didn’t mention earlier that for the first time in four births I listened to music while waiting for my baby to arrive. I’ve had songs attached to each of my pregnancies, but playing music in the delivery room was something I wanted to do from my first pregnancy but never did. Needing to calm down from my panic attack forced me to turn on music that would calm me.
There’s really two kinds of music that I enjoy listening to: music that pumps me up and music that calms me down. I tend towards power anthems and strong female vocalists; I think that this may be a reflection of my personality. But then there are softer, acoustic ballads that I tend to listen to on rainy days or on airplanes when I’m trying to fall asleep. It was just this second type of music that I ended up listening to, actually. I listened to the whole Roo Panes discography while I slept and after I awoke. I already had a sentimental attachment to Roo Panes because Lucas and I listened to Little Giant on our honeymoon quite often… but putting it in the context of waiting for the arrival of this baby made my connection to it more meaningful. More sacred, that a little over five years later I would be listening to the same music that played as I began a new life that would be wilder than I ever imagined…
Someone recently asked me how many kids I want to have and I said I don’t really know. If I’m being honest, I’m the oldest of seven and I’ve always felt that seven is a perfect number. (I mean biblically speaking it is, right.) But the fact is that every time I have a new baby I am overwhelmed … yes, overwhelmed because adding a new person and responsibility is a lot, but especially overwhelmed with love and gratitude.
2020 has been a historical year for the world…but if I’m being honest, the previous 5 years were all more world shattering for me. And I spent 3 months not being able to walk last fall… I had already experienced quarantine but on a much more physically painful level.
I bring this up because Thea was not in my 2020 plan. But good Lord … I am so damn happy that she’s here. I am so grateful that she was entrusted to me. I am so grateful that after cancer I was able to have a baby (and so easily). I am so grateful to have such an amazing partner in all of this. Lucas won’t ever read this, (he doesn’t even have the patience for captions) but I am so grateful for him.
In the end, Thea’s birth fits her. Unplanned, full of surprises, but in the chaos … peaceful, at times. And while I think I’ll always have an “ideal” birth plan, the way she made her way into the world was just fine.
Back in February I decided that I wanted to take on Liv’s room as my project for the April 2020 One Room Challenge!
Her room had been kind of ignored when we moved in because well, I had cancer and no time or energy to get to work on it. In January when I finally was back on my feet (literally) I wanted a space that would take minimal help from Lucas to work on (aka, no heavy duty tools were needed) and since her space basically just needed decor, it was a perfect fit!
Liv’s Room: Before RedecoratingLiv’s Room: Before Wallpaper!
The first easy fix was adding an actual rug and swapping out her bedding for some cute toddler bedding! I worked with Loloi Rugs and chose this adorable rug for her room. I know that a lot of nurseries and toddler rooms these days have neutral rugs but personally I feel like children’s bedrooms should be reflective of their personalities and Liv actually picked this one of the four choices I gave her! Pink and yellow are her favorite colors so I love that this rug really showcases those colors without being too bright.
I also purchased this toddler comforter from Loomwell.
The next step was figuring out what to do with the wall opposite her bed. Her room is kind of an odd shape and that wall is the only full wall in the room, so it made sense to put wallpaper there!
I reached out to Loomwell and picked a mural that I felt really complimented the space and made a statement without being too bold. Working with a lot of patterns already meant that I wanted something that was subtle but beautiful and wouldn’t clash, and this Madeline wallpaper immediately jumped out at me! Lucas and I put together a video on our whole process and it’s a little long for Instagram so I’ve included my YouTube video below so you can get an idea of how the process went!
Loomwell hasn’t asked me to write this so I want to be completely transparent with our process!
I have installed peel and stick wallpaper from another company previously and it was SO. HARD. Based on that experience, we decided to overestimate how big the wall was just in case, which meant we did have to cut nearly 1/3rd off of the fourth panel to make it fit. However, and I’m not sure if it’s because Loomwell has their own installation video that we watched before or not, but it was so much easier than my first experience! Lucas and I had it done in a little over 30 minutes, and honestly it only took that long because we had to figure out what to do with the door molding that was touching the wall and cutting the fourth piece/ getting it behind the radiator. I 100% recommend Loomwell and would definitely use them again!
unedited + unstaged photo for truest color of the wall + truest depiction of this crazy cat toddler
I am not great about writing weekly blog posts, but most of the other One Room Challenge participants are! You can see more #oneroomchallenge inspiration, progress and posts here.
Hello 2020! I have not written an update in quite some time, so I decided to force myself to write while I have a little time to myself.
Going into this new year and new decade should feel exciting, but part of me feels some grief for the end of the last decade and the start of this one. This will be a decade of scans every 6 months, of wondering if my cancer is going to come back – and if it’s going to come back worse. Sarcoma likes to go to the lungs, so I’ll have MRIs on my leg and CT scans on my lungs for all of the 20s. If it doesn’t come back, then in the 30s I’ll be home free, but if it does…
It’s not something I like to think about but that creeps up on me when I least expect it. It comes to me in the silence of the night and when I’m alone, in the quiet few moments I have in the morning before the rush of mothering takes over. The grief for the normalcy I have lost, for the pain that I’ve been through, for the fact that more than anything I have faced the stark reality of my mortality. Not a day has gone by that I haven’t thought about my cancer; it doesn’t help that nearly four months out of my surgeries I am still not “back to normal.”
My leg muscles basically atrophied from lack of use for months and the process of getting them strong again is not going to be a quick one. I’ve been going to PT for three weeks now and I have noticed the improvement in my gait and my strength since starting but man, I have a LONG way to go. I still can’t run or jump properly and still struggle with going down the stairs. My walking has improved immensely and I’m trying to walk as much as possible to get that strength back, but I get tired quicker than I’d like. I have youth and determination on my side, but I have bone damage and a missing muscle working against me.
Less than two weeks ago I met with my plastic surgeon and my surgical oncologist to look at my healing and check up on me. I am officially discharged from plastic surgery! My plastic surgeon is a genius and one of my favorite people that I’ve had to work with during the past six months but I’m happy to never see him again. If for some reason the calf muscle that was rotated to my shin doesn’t relax in the next year, we may talk about a second surgery to cut out the nerves. It just feels really wrong – for lack of better verbiage – whenever I move that muscle. My cat scan and MRI are scheduled for February 24th – which means I’ll get to spend my birthday (the 25th) anxious for my results.
I’m what they consider NED – no evidence of disease. I’ll be cancer free if I make it through the next decade without sarcoma making another appearance…which it very well may, considering that it was high grade. So what does that mean for me? Do I stop living my life because my cancer might come back? No. Do I live in constant anxiety that it might? Also no. But it does mean allowing myself to crack my defenses a little bit every so often. It does mean that some days I feel that grief in my throat and that pit in my stomach. It means that some moments I do feel like it’s just a matter of time before this damn thing comes back with a vengeance. But I think that’s just…part of my life now. It is part of what this is. My new normal.
And part of that new normal is also figuring out what is healthy for me. I’ve been slowly but surely realizing that social media has drained me more than I expected and more than I’d care to admit. When I was stuck in bed or in my wheelchair it was a good way for me to occupy my time, but now, as it’s been some time without family staying in my house to help me, it’s becoming an extra thing on my to-do list. Social media is important to me for a lot of reasons – it’s a way for me to connect with others, it’s a way to update those around me and it’s a source of income. But social media is vicious and a lot of times I get caught up in “succeeding” – what my insights are, how often I post, feeling the need to post every day, etc. But I don’t want social media to be another thing controlling my life. I have a lot of collaborations and partnerships this month to get through but then we’ll see if it’s time for a well-earned break. All of my experience with cancer has made me recognize how fleeting time is, how quickly days and weeks and months go buy. I feel robbed of months of my children’s lives this year because of this situation – and I don’t want social media to do that too.
I don’t know what the new normal is going to look like for me, yet. I’m hoping that in the next few weeks I get some clarity about what’s best for my overall health.
After my first surgery I thought that I’d have the wound VAC on for 2-3 weeks, minimum. My appointment to meet with my plastic surgeon was nine days post-op because it was clear after the first VAC change that my tissue wasn’t going to grow back on it’s own. That’s the thing about radiation; it doesn’t discriminate. Just because I’m young and otherwise healthy didn’t mean I got to escape the full force of radiation. My tissue was (and is) so damaged. Too damaged to consider any other alternative.
My plastic surgeon came highly recommended, with a last name that no one could pronounce. My oncologist told me everyone loved him and my nurse raved about him. I wasn’t sure what I expected but I suppose a counterpart to my older, very experienced surgical oncologist? Instead when the plastics team walked in I was surprised to note that they were all fairly young – and the Ativan I had taken prior to this third VAC change loosened my lips enough to ask if I should let them operate on me (OOPS. Remind me that anxiety meds are not my friend). They assured me they were (and to further comfort myself I did some background checks and yes my doctor was very qualified).
Dr. Sammy told me that I had a few options. First: I could get a tummy tuck. The location where the sarcoma had made its home was soft-tissue, not muscle, so taking soft tissue and replacing it would be the most aesthetically pleasing solution. However, the surgery itself would be long (~6 hours) and he would basically have to clear a whole day to do it. He said it would probably be another 3 weeks before we could do it, and worse, he said, was recovery. While I’d get the benefit of a tummy tuck after three kids, I’d also have to deal with the recovery which would be difficult and extra painful in an area that would otherwise be untouched.
My other option, he said, wasn’t so pretty. They’d make a long incision in the back of my calf, pull out one muscle, and fill the hole with the muscle. Calf muscle doesn’t belong in the front of your tibia, but it would do the job. It would be a lot less aesthetically pleasing, but recovery would be significantly easier. Either way they would take skin from my thigh or butt and cover the new area. The other thing? He would put me on his schedule the NEXT DAY.
The decision was basically made for me. The only reason to take the first option was for the sake of vanity. And yes, of course it was tempting…but knowing that I could get this gaping hole in my leg filled and the wound VAC off, and to get back home to my kids before the end of September, was so worth it.
I packed a bag, expected to be there for a few days. They said I’d probably say from Friday – Sunday or Monday. My mother-in-law was already staying with us so we didn’t have to worry about the kids. I tried to force my brain to get into fight mode, knowing that my first surgery was harder than expected and not knowing what the second would really be like.
I got to scrub down with that terrible surgical soap again, this time having an allergic reaction (because why not, right?). We were back at the hospital at 9 AM the next day.
This time around my surgery prep team was very on top of things. There was a huge flurry of activity, different people coming in and out, overloading me with information. This time I saw an actual anesthesia team – who informed me that I didn’t need to dump any of my milk (contrary to what the resident of my previous team had told me). They explained that they were going to put a catheter in my leg and it would administer local anesthesia to my leg to keep it numbed in addition to the general anesthesia I’d receive before going into surgery. They said they’d keep this pain blocker in after my surgery to help keep the pain under control. Apparently even after three babies I have great anatomy and the head anesthesiologist took the opportunity to draw some explanations out on one side of my pelvis for his resident. I took it as a compliment.
My plastic surgeon came in with an ultrasound machine to draw all over my calf to plan where he would take the muscle from. He told me that drawing it out he’d be able to minimize the incision to remove the muscle – I’d have a 6 inch incision instead of the usual 12 inch one. Then we figured out where we’d take the donor skin from: my right butt cheek, as close to my hip as possible. And then we were ready. It was a short surgery, they said. 2 hours max. I gave my stuff to the nurse to keep just in case someone forgot to call my husband. And waved goodbye for the second time in two weeks.
Once again they wheeled me away to the surgery room. For whatever reason I can’t remember it as clearly as I can remember the surgical room for the first surgery. I think it was a shorter ride over. The same process – moving to the surgical table, an oxygen mask and then blackout.
Waking up was as hard as it was the first time. I was super disoriented, I remember feeling super parched and exhausted. I told my nurse in my delirium that she was pretty. (She was, I stand by that). It took me an hour or so to do well enough for them to let Lucas see me. Once again, he came in looking more tired than I was. It had been another surgery that took two hours longer than anticipated. I went in at noon and when I saw Lucas it was already after six pm.
But, Lucas told me, had I seen Dr. Sammy? I hadn’t. And so Lucas told me that my surgeon had attempted something new. That I hadn’t been told about. He attempted – and succeeded – to move the muscle from the back of my calf to the front without making an incision. He had spared me additional suffering and an additional scar. That’s why my surgery took longer. Here are the pictures from my surgery that Dr. Sammy sent me, a week later.
Coming out of this surgery was hard. I woke up to another wound VAC on my leg, and a brace. I thought that my last hospital stay was hard; little did I know what was coming.
I should have known that the night would go wrong from the get go. It took them an hour to find my belongings, which should have been taking to a locker but that were somehow misplaced. Once they found my things, Lucas was too tired to stay with me – so I gave him my blessing to take Blaise and go home. Almost as soon as he left my nurses decided to take me to my room. My mother in law and left me some balloons that were a nice gesture but more trouble than they were worth and they made a few jokes about the balloons getting in the way. We got into the elevator and one of my tubes got stuck in the door. We were trapped, for a solid 30 minutes.
I took this in the elevator that we were stuck in. She is pretty, right? I cracked some jokes about how they should be glad that I wasn’t a smelly old man; they agreed. I’ve always been one for gallows humor, particularly during this time that I’ve had cancer. I remember them blaming the balloons.
We did eventually get out, thanks to the nurses on the other side who were able to cut the cord that had gotten stuck in there. We made it out and into my room which was a solo room (THANK GOD. It’s already bad enough to use a bedpan, but using it with another person on the other side of the room? Nah. No thanks.)
I was greeted by a very sweet older nurse named Bill who will forever be my favorite nurse because he made me a peanut butter and jelly sandwich when I hadn’t eaten anything in close to 24 hours; he tried to help me get comfortable and settle in for the night. Little did I know what would happen as the night went on…
Somehow, someone made a mistake. Well, multiple mistakes were made. The first one was that the catheter in my leg was disconnected after surgery; while the catheter itself remained in my leg, the actual drip itself was disconnected. I am not sure who decided that, but it happened before I moved out of post-op. The second mistake was that we took the heart monitors off. That would usually not be a big deal, but the hospital apparently only had a limited number and in order for me to be connected to the pain blocker I had to have the heart monitors on. So without those, I couldn’t be reconnected.
My pain progressively got worse as the pain blocker wore off; I had taken a dose of oxycodone when I first got to my room. Around midnight, Bill had left and another nurse was with me for the night, and my pain was becoming unbearable. She attempted to get a hold of the anesthesiologist on call to reconnect the pain blocker. She tried every 30 minutes to no avail. My IV was starting to hurt, so I got a new one placed. I learned to ask for the IV with the blue cap because that’s the one they use for children and apparently I have tiny veins. Another hour passed. Another. It was three AM and she wanted to give me another oxycodone…except it had been taken off of my chart. The one drug that I had been on since my first surgery had been removed from my chart in the middle of the night, hours after a second intense surgery. I was left to cope with Tylenol for the longest vigil of pain I had ever experienced in my life.
In those late hours of the night I recorded some Instagram stories. I messaged whoever was awake. I remember texting and the pain I was in was so bad that I would black out halfway through typing so the sentence would start out normal and would end like thisshwuejdnwh….
Somehow I made it through the night. I didn’t sleep. We could not get a hold of anyone. I did not get an answer from anesthesia or the plastic surgery team until nearly 9 AM the next day.
It was a mistake, they said. The tall, blonde plastic surgeon with a high ponytail and the hipster, less attractive plastic surgeon with the round glasses. They said they didn’t know how it happened. The anesthesiologists apologized too as I sobbed and asked how the actual fuck everything had been removed from my chart and that there were no heart monitors to put on me to reconnect the pain blocker. I had spent the night feeling like someone had taken my leg muscle and was twisting it like a loaf of Babka and then stabbing me with a knife. My donor site, which I was forced to sit on since they ended up flaying the skin from the middle of my butt cheek, was barely a nuisance compared to the severe anguish I felt from my leg. They told me that usually people can’t handle the pain from the donor site, so that gave everyone some perspective. The fact is that radiated tissue is severely damaged and sensitive; and I had just had my bone scraped not even two weeks prior. Of course that pain was tremendously worse than a sheet of skin that had been removed like roast beef from my ass.
They put the pain blocker back in and put oxycodone back on my chart. I could take up to 15mg per dose, every 4 hours…which is what my previous team had told me I could take in 12 hours if I wanted to nurse. Apparently not everyone is informed when it comes to pumping and that dumping is really a thing of the past. I managed with 10mg for the most part, every 4 hours, with the pain blocker.
When I saw my surgeon later that day he was furious. FURIOUS. I mean, he was angry enough that he repeated multiple times that he submitted an incident report. What had happened to me, he said, was not acceptable. Someone would reap the consequences of their actions – but really, I’m the one who reaped them. He apologized so many times. He wrote his cell phone number on my board for me in case anything happened – and as a warning to everyone else that he was watching.
Dr. Sammy also gave me a new healing and pain regimen. A long list of vitamins (a prenatal, vitamin c, calcium + magnesium), some eastern medicine and this powder called Juven to dump in a drink and chug. He said I needed to be on a high protein diet. Whatever it took to get me to a place where I could start healing.
He also explained a little about why he did what he did in the operation room. He wanted to practice on a corpse first but he didn’t have any time. And really, what he did on me he wouldn’t do on an older patient. But it could change the lives of young sarcoma patients. Sarcoma is only 1% of all cancer. There’s not a lot of funding that goes into it, and not a lot of experimenting. Usually, Sarcoma has two peaks: children under 15, and adults over 60. To get someone in their late 20s is extremely uncommon. But that made me the perfect person to try this out on. The success of this surgery, he said, would change the lives of children with sarcoma. They wouldn’t need to get an incision the length of their arm or leg to move muscle around. They could do it with some cameras and pull it over and know that it would work. This is something that I am still blown away by, a month later.
The rest of my stay was hard. My pain was bad, very frequently. I missed my kids. I hated using a bedpan or the portable toilet that they’d place next to my bed. I forced myself to keep pumping for Blaise. I struggled to sleep because even when the pain subsided, the narcotics gave me nightmares.
I realized then, those first few days out of the six I was in the hospital, that I would not be walking out of there like I had thought I would. The pain was no where near leaving. My kids were not going to have their mom back just yet.
This was the hardest thing I’ve ever done. Emotionally. Physically. I was alone so much, alone with my pain and my thoughts and wondering why, why had God allowed this in my life? To baptize me through fire? Because I’m sorry, but the whole “God never gives you more than you can handle” thing is not true. God gives you more than you can handle so that you lean on him and not yourself. And I can tell you honestly that I had a lot of conversation with God during my time in the hospital, although a lot of it involved swearing…
The sixth day came. At 6 AM they came and took the wound VAC off. They told me they’d work on my discharge papers and my meds. And I was officially free, not “cancer free” because they don’t use that terminology if you’re like me and have a 20% chance of recurrence. But free to go home and free of any more surgeries, for the time being…
I got home and laid down with my kids. And thanked God for letting me be there with them. I hoped then that I would be walking in a week. Well, that wasn’t the case. But I made it. I freaking made it home.
Becoming Bostonian 